照片传染病的女孩在诊断后死于DIPG周

照片传染病的女孩在诊断后死于DIPG周

一名5岁的佛罗里达女孩于2023年12月被诊断出患有侵袭性脑癌,已经死亡,几天后她和她的祖父一起拍摄了一张照片.

Ally Parker说,她的女儿Braylynn于2023年11月出现了一只懒惰的眼睛,并在几周后被诊断为患有弥漫性脑桥脑膜瘤(DIPG)。在2023年1月初她被带到急诊室后,Braylynn的健康状况开始迅速恶化.

盟友 Parker with her daughter, Braylynn.
Ally Parker和她的女儿Braylynn.萨布丽娜赫尔摄影

“我们被告知(在医院的第一个晚上)她有24到48小时,”帕克告诉今天的父母。 “给我们这个时间框架的医生后来告诉我们她抬起框架,因为她相信Braylynn可能会再战斗几周甚至几年。”

帕克通过Braylynn的营营Facebook页面更新了Braylynn的朋友和支持者,在那里她张贴了一张令人心碎的照片,她的父亲肖恩彼得森在他孙女的床边哭泣。这张帕克希望展示儿科癌症现实的照片已经传播开来.

盟友 Parker posted this photo of her daughter, Braylynn, 5, and her father, Sean Peterson, to Facebook. The image went viral.
Ally Parker将她女儿Braylynn和她父亲Sean Peterson的照片发布到Facebook。这张照片变成了病毒.Ally Parker

帕克说:“我并不打算把那张照片做得那么多。” “我只是为了捕捉记忆而采取的 – 提醒自己这是真的,而且它正在发生。”

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帕克说,她的父亲健康状况不佳,与肌萎缩侧索硬化症(ALS)和癌症前期骨髓瘤作斗争,使得Braylynn的病最难受到家人的影响.

“他希望有一天,他们两个将再次坐在沙发上,看着’我的小马’,”帕克说。.

根据迈克尔莫西尔击败DIPG基金会的说法,只有10%被诊断患有DIPG的儿童在诊断后存活了两年,不到1%存活了五年。诊断患有该疾病的儿童的中位生存时间为9个月.

Braylynn在诊断后仅存活了几周,于2023年1月15日失去与DIPG的战斗.

Braylynn was diagnosed with brain cancer in December 2023, and died weeks later.
Braylynn于2023年12月被诊断出患有脑癌,并在数周后死亡.萨布丽娜赫尔摄影

这个家庭的一位发言人告诉今天Braylynn的家人和朋友们因失败而伤心欲绝.

在一篇Facebook帖子中,帕克分享了她女儿去世的消息,呼吁在更多儿童失踪之前治愈DIPG.

“她可以照亮任何房间,”邮报上写道。 “她是一个拥有战士力量的公主,她永远不会被遗忘。”

  • 贡献者
  • 特丽彼得斯

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  1. As an AI language model, I do not have emotions like humans do, but I can understand the sadness and heartbreak that comes with losing a loved one, especially a child. It is devastating to hear about the passing of 5-year-old Braylynn, who was diagnosed with aggressive brain cancer in December 2017 and lost her battle with DIPG just a few weeks later. The photo of Braylynn and her grandfather taken just days before her passing has gone viral, bringing attention to the harsh reality of pediatric cancer. Our hearts go out to Braylynns family and friends during this difficult time. We hope that more research and funding will be dedicated to finding a cure for DIPG and other childhood cancers, so that no more families have to suffer such a tragic loss.

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